On October 7 & 8, our President Emma Del-Rey proudly represents the A.M.Mi Association at the Rare Disease Meetings 2025 at the Cité Internationale Universitaire de Paris.
Two days of reflection, exchange, and innovation around a hopeful theme:
Screening, diagnosis, and treatments.
The Rare Disease Meetings is a key event bringing together patients, caregivers, researchers, healthcare professionals, public decision-makers, and pharmaceutical industry stakeholders around the challenges of the 4th National Rare Disease Plan (PNMR4).
A.M.Mi’s presence highlights the importance of active representation for patients with mitochondrial diseases within national and European discussions on rare diseases.
Because every advance, every discovery, every dialogue matters to offer more hope to families.
Together, let’s advance research, diagnosis, and care.
Day 2 Program:
– From clinical research to patient access to innovations
– Community and hospital care and follow-up
– New tools for diagnosis and monitoring
A great program featuring excellent speakers!!!
Also proud to have participated from its inception to the coordination of the Rare Disease Pathways Training project with Maladies Rares Occitanie and #DelphineDominiqueVissac
The poster was seen by all participants and the team was able to answer questions.
