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Prochaine réunion du groupe Ethique sur le niveau de soin dans la prise en charge palliative pour les maladies mitochondriales et lysosomales
Prochaine réunion du groupe Ethique sur le niveau de soin dans la prise en charge palliative pour les maladies mitochondriales et lysosomales
01/04/2026 16h00 - 17h00
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Conseil national Alliance Maladies rares
Conseil national Alliance Maladies rares
02/04/2026 10h30 - 16h00
Alliance Maladies Rares
102 Rue Didot, 75014 Paris, France
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Réunion Zoom de CA Association AMMi Emma Del-Rey
Réunion Zoom de CA Association AMMi Emma Del-Rey
07/04/2026 20h30 - 22h00
https://us06web.zoom.us/j/81280747327?pwd=ejO1YJg3QytmjRqNbDgeL3m4IYSl0r.1
Association AMMi Emma Del-Rey vous invite à une réunion Zoom programmée.
Participer à la réunion Zoom
https://us06web.zoom.us/j/81280747327?pwd=ejO1YJg3QytmjRqNbDgeL3m4IYSl0r.1
Ordre du jour de réunion
https://docs.zoom.us/agenda/doc/22b5ab44-957d-4474-a228-2eca91f7f476
ID de réunion: 812 8074 7327
Code secret: 233775
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Une seule pression sur l’appareil mobile
+12532050468,,81280747327#,,,,*233775# États-Unis
+12532158782,,81280747327#,,,,*233775# États-Unis (Tacoma)
Instructions pour participer
https://us06web.zoom.us/meetings/81280747327/invitations?signature=-2ClAgC1VhA6wcZDdMJqso4VE-DL6UusdcKMmxSYXR4
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C.R.E.A Financial Statements Support (w/ADATI)
C.R.E.A Financial Statements Support (w/ADATI)
08/04/2026 16h00 - 17h00
https://us06web.zoom.us/j/85393115215?pwd=OEXFGMP8gZmzJynZh6Ksj7WoaXK4J3.1
────────── E+A Alliance le está invitando a una reunión de Zoom programada. Únase a la reunión de Zoom https://us06web.zoom.us/j/85393115215?pwd=OEXFGMP8gZmzJynZh6Ksj7WoaXK4J3.1
Ver información de la reunión con Zoom AI Companion https://us06web.zoom.us/launch/edl?muid=612a7910-862c-48bd-9af3-6d9b52b9c01e
ID de reunión: 853 9311 5215 Código de acceso: 992272
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Instrucciones para unirse https://us06web.zoom.us/meetings/85393115215/invitations?signature=vHqASaq0Q1pjnfnKnRon4hCeQCbUDGAPzUtrCd5wF50
──────────
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E+A Board - Updates Survey
E+A Board - Updates Survey
09/04/2026 18h00 - 19h00
https://us06web.zoom.us/j/82839863123?pwd=DUKNyquNJ1aHbti2wE596JdqlHptam.1
────────── E+A Alliance le está invitando a una reunión de Zoom programada. Únase a la reunión de Zoom https://us06web.zoom.us/j/82839863123?pwd=DUKNyquNJ1aHbti2wE596JdqlHptam.1
Ver información de la reunión con Zoom AI Companion https://us06web.zoom.us/launch/edl?muid=f6f6d3ce-5af2-47ad-990f-67804757f560
ID de reunión: 828 3986 3123 Código de acceso: 167259
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Instrucciones para unirse https://us06web.zoom.us/meetings/82839863123/invitations?signature=Ij-V6AgT-dXlyYKAuYuacXL9GEvheop9f-kON_mhGTc
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Journée Calisson
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Art Show Concept Review
Art Show Concept Review
10/04/2026 16h00 - 17h00
https://us06web.zoom.us/j/82971023626?pwd=oAP2mvsF0EfwnShxAAbKfOeaOw40kk.1
Dear Art Supporters of UCB,
We are happy to announce that we are planning the 3rd edition of the Art Exhibition at UCB this year. As in the two previous editions, we are kindly inviting Sandrine Dufour to be our curator and to deliver the opening speech.
Please, find the agenda below:
AGENDA, UCB Art Show 2026 Kickoff:
First half hour (All attendees)
Introductions to Mitochondrial disease patient advocates and icebreaker (Cristy, Tanja, all) (10 minutes)
Creative exercise to choose the 2026 Art Show theme (ALL) (20 minutes)
At the half hour following the above, the executive leadership can be excused.
Second half hour (advocates and core UCB team):
Working with the global Mito patient community to activate interest and art submissions
Logistics and planning, next steps
Closing
This meeting is held via Zoom in order to support accessibility requests from the patient advocate attendees. Please join using the Zoom link provided below
Topic: Art Show Kickoff
Time: Apr 10, 2026 10:00 AM Eastern Time (US and Canada)
Join Zoom Meeting
https://us06web.zoom.us/j/82971023626?pwd=oAP2mvsF0EfwnShxAAbKfOeaOw40kk.1
Meeting ID: 829 7102 3626
Passcode: 8w3DWn
We look forward to connecting with you soon!
Kind regards,
Tanja, Cristy & Delphine
Art Show 2026
________________________________
Legal Notice: This electronic mail and its attachments are intended solely for the person(s) to whom they are addressed and contain information which is confidential or otherwise protected from disclosure, except for the purpose for which they are intended. Dissemination, distribution, or reproduction by anyone other than the intended recipients is prohibited and may be illegal. If you are not an intended recipient, please immediately inform the sender and return the electronic mail and its attachments and destroy any copies which may be in your possession. UCB screens electronic mails for viruses but does not warrant that this electronic mail is free of any viruses. UCB accepts no liability for any damage caused by any virus transmitted by this electronic mail. (Ref: #*UG1107) [Ref-UG1107]
________________________________
Voir plus de détails
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E+A Board - Updates Survey
E+A Board - Updates Survey
16/04/2026 18h00 - 19h00
https://us06web.zoom.us/j/82839863123?pwd=DUKNyquNJ1aHbti2wE596JdqlHptam.1
────────── E+A Alliance le está invitando a una reunión de Zoom programada. Únase a la reunión de Zoom https://us06web.zoom.us/j/82839863123?pwd=DUKNyquNJ1aHbti2wE596JdqlHptam.1
Ver información de la reunión con Zoom AI Companion https://us06web.zoom.us/launch/edl?muid=f6f6d3ce-5af2-47ad-990f-67804757f560
ID de reunión: 828 3986 3123 Código de acceso: 167259
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Instrucciones para unirse https://us06web.zoom.us/meetings/82839863123/invitations?signature=Ij-V6AgT-dXlyYKAuYuacXL9GEvheop9f-kON_mhGTc
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KetoCollege KDT Webinar joining information - registered delegates
KetoCollege KDT Webinar joining information - registered delegates
22/04/2026 14h30 - 15h30
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Patient and Public Involvement| Review of Clinical Trials Documents | Ammi Asso - Medpace
Patient and Public Involvement| Review of Clinical Trials Documents | Ammi Asso - Medpace
23/04/2026 11h00 - 11h30
Microsoft Teams Meeting
________________________________________________________________________________
Microsoft Teams meeting
Join: https://teams.microsoft.com/meet/232095712481612?p=fklJHSs6yCM26DyBvN
Meeting ID: 232 095 712 481 612
Passcode: xx6zi7N6
________________________________
Need help? | System reference
Dial in by phone
+1 513-666-4290,,921361931# United States, Cincinnati
Find a local number
Phone conference ID: 921 361 931#
For organizers: Meeting options | Reset dial-in PIN
________________________________________________________________________________
Voir plus de détails
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Pre-work: April 23 UCB TK2d Steering Committee Meeting
Pre-work: April 23 UCB TK2d Steering Committee Meeting
23/04/2026 16h00 - 17h30
Voir plus de détails
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UCB TK2d/Mito Patient Organization Steering Committee Meeting
UCB TK2d/Mito Patient Organization Steering Committee Meeting
23/04/2026 16h00 - 17h30
https://us02web.zoom.us/j/83739685154
Dear TK2d/Mito Steering Committee,
We’re looking forward to our second meeting of 2026!
* Zoom link / Enlace de Zoom: https://us02web.zoom.us/j/83739685154
* Time / Hora: 10:00-11:30 AM EDT / 16:00-17:30 CEST
* Date / Fecha: Thursday, April 23 / jueves, 23 de abril
Agenda and further details to follow soon.
Voir plus de détails
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Financial Statements Approval - All Members
Financial Statements Approval - All Members
23/04/2026 18h00 - 19h00
https://us06web.zoom.us/j/89779079592?pwd=s2c18iNA1koa1ekHLYmIQTmo4bX4Kc.1
────────── E+A Alliance le está invitando a una reunión de Zoom programada. Únase a la reunión de Zoom https://us06web.zoom.us/j/89779079592?pwd=s2c18iNA1koa1ekHLYmIQTmo4bX4Kc.1
Ver información de la reunión con Zoom AI Companion https://us06web.zoom.us/launch/edl?muid=ca94adcb-1043-44ec-b3a0-b9a4a208e07c
ID de reunión: 897 7907 9592 Código de acceso: 614403
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Thérapie dans les maladies Mitochondriales
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Préparation café des aidants avec maladies rares Occitanie
Préparation café des aidants avec maladies rares Occitanie
24/04/2026 9h30 - 12h00
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UCB / TK2d - restitution projet parcours patients avec Alcimed
UCB / TK2d - restitution projet parcours patients avec Alcimed
30/04/2026 9h00 - 10h00
Réunion Microsoft Teams
Comme convenu,
Voici le lien pour nos échanges,
Bien à vous,
Servane
________________________________________________________________________________
Réunion Microsoft Teams
Rejoindre : https://teams.microsoft.com/meet/335193446012456?p=WZjuDjUBD7QRSQR403
Numéro de réunion : 335 193 446 012 456
Code secret : DM2gt6Kf
________________________________
Besoin d'aide ? | Référence système
Participer par téléphone
+33 1 73 24 04 19,,128476287# France, All locations
Trouver un numéro local
Numéro de conférence téléphonique : 128 476 287#
Pour les organisateurs : Options de réunion | Réinitialiser le code PIN d'appel
________________________________________________________________________________
________________________________
UCB PHARMA, société par actions simplifiée au capital de 82.731.600 euros, immatriculée au registre du commerce et des sociétés de Nanterre sous le numéro 562 079 046, ayant son siège social sis Tour Emblem - 7, allée de l’Arche - 92400 Courbevoie
(Ref: #*UFR0226) [Ref-UFR0226]
________________________________
Legal Notice: This electronic mail and its attachments are intended solely for the person(s) to whom they are addressed and contain information which is confidential or otherwise protected from disclosure, except for the purpose for which they are intended. Dissemination, distribution, or reproduction by anyone other than the intended recipients is prohibited and may be illegal. If you are not an intended recipient, please immediately inform the sender and return the electronic mail and its attachments and destroy any copies which may be in your possession. UCB screens electronic mails for viruses but does not warrant that this electronic mail is free of any viruses. UCB accepts no liability for any damage caused by any virus transmitted by this electronic mail. (Ref: #*UG1107) [Ref-UG1107]
________________________________
Voir plus de détails
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ASM, to treat or not to treat
ASM, to treat or not to treat
30/04/2026 17h00 - 19h00
https://us06web.zoom.us/w/89848144989?tk=r4evHPG4vLJ0NIDE25BqfrwaY6cZbybixQAtIi535Ng.DQkAAAAU613kXRZqUUJpNXdmQVFKV3ExZTlfaTF5UTFnAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA&pwd=f9HnBpcZfsO9acSw3xIdTa2UbEh6eS.1&uuid=WN_MCqliEcIRWe4SjnG7KHQIg
Sujet : ASM, to treat or not to treat
Participer depuis un PC, Mac, iPad ou appareil Android:
https://us06web.zoom.us/w/89848144989?tk=r4evHPG4vLJ0NIDE25BqfrwaY6cZbybixQAtIi535Ng.DQkAAAAU613kXRZqUUJpNXdmQVFKV3ExZTlfaTF5UTFnAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA&pwd=f9HnBpcZfsO9acSw3xIdTa2UbEh6eS.1&uuid=WN_MCqliEcIRWe4SjnG7KHQIg
Code secret :242338
Une seule pressio sur le téléphone :
+16465588656,,89848144989#,,,,*242338# États-Unis (New York)
+16469313860,,89848144989#,,,,*242338# États-Unis
Participer par audio:
+1 646 558 8656 États-Unis (New York)
+1 646 931 3860 États-Unis
+1 669 444 9171 États-Unis
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+1 719 359 4580 États-Unis
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+1 386 347 5053 États-Unis
+1 507 473 4847 États-Unis
+1 564 217 2000 États-Unis
Identifiant du Webinaire: 898 4814 4989
Code secret : 242338
Numéros internationaux disponibles : https://us06web.zoom.us/u/kbHAEzKVaJ
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E+A Board - Updates Survey
E+A Board - Updates Survey
30/04/2026 18h00 - 19h00
https://us06web.zoom.us/j/82839863123?pwd=DUKNyquNJ1aHbti2wE596JdqlHptam.1
────────── E+A Alliance le está invitando a una reunión de Zoom programada. Únase a la reunión de Zoom https://us06web.zoom.us/j/82839863123?pwd=DUKNyquNJ1aHbti2wE596JdqlHptam.1
Ver información de la reunión con Zoom AI Companion https://us06web.zoom.us/launch/edl?muid=f6f6d3ce-5af2-47ad-990f-67804757f560
ID de reunión: 828 3986 3123 Código de acceso: 167259
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Instrucciones para unirse https://us06web.zoom.us/meetings/82839863123/invitations?signature=Ij-V6AgT-dXlyYKAuYuacXL9GEvheop9f-kON_mhGTc
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