Our Actions

News and Events

Agenda

Upcoming Events

April 2026

Mon Tue Wed Thu Fri Sat Sun
1
  • Prochaine réunion du groupe Ethique sur le niveau de soin dans la prise en charge palliative pour les maladies mitochondriales et lysosomales
2
  • Conseil national Alliance Maladies rares
3
4
5
6
7
  • Réunion Zoom de CA Association AMMi Emma Del-Rey
8
  • C.R.E.A Financial Statements Support (w/ADATI)
9
  • E+A Board - Updates Survey
10
  • Journée Calisson
  • Art Show Concept Review
11
12
13
14
15
16
  • E+A Board - Updates Survey
17
18
19
20
21
22
  • KetoCollege KDT Webinar joining information - registered delegates
23
  • Patient and Public Involvement| Review of Clinical Trials Documents | Ammi Asso - Medpace
  • Pre-work: April 23 UCB TK2d Steering Committee Meeting
  • UCB TK2d/Mito Patient Organization Steering Committee Meeting
  • Financial Statements Approval - All Members
  • Thérapie dans les maladies Mitochondriales
24
  • Préparation café des aidants avec maladies rares Occitanie
25
26
27
28
29
30
  • UCB / TK2d - restitution projet parcours patients avec Alcimed
  • ASM, to treat or not to treat
  • E+A Board - Updates Survey

Our Recent Articles

Researchers from Inserm and the NeuroCentre Magendie (Bordeaux) published a fascinating study in August 2025: they successfully stimulated mitochondrial activity

Mitochondrial diseases are rare, complex, and often misdiagnosed. This is why MITOMICS, an ambitious French project funded as part of