Today, the role of patients is central to the management of neuromuscular diseases.
This is why association representatives can be trained on an equal footing with clinicians and therapists, in order to combine insights and enrich practices.
This training aims for a holistic approach to patient care, integrating all dimensions of living with the disease.
Many thanks to ERN-NMD and FILNEMUS, who organize and make this project possible.
Researchers from Inserm and the NeuroCentre Magendie (Bordeaux) published a fascinating study in August 2025: they successfully stimulated mitochondrial activity
Mitochondrial diseases are rare, complex, and often misdiagnosed. This is why MITOMICS, an ambitious French project funded as part of
MEET THE PEOPLE BEHIND Epilepsy Plus – E+ Introducing Emma Del Rey, E+ consultant, Board Member of International Mito Patients,
Researchers from Inserm and the NeuroCentre Magendie (Bordeaux) published a fascinating study in August 2025: they successfully stimulated mitochondrial activity
Mitochondrial diseases are rare, complex, and often misdiagnosed. This is why MITOMICS, an ambitious French project funded as part of
MEET THE PEOPLE BEHIND Epilepsy Plus – E+ Introducing Emma Del Rey, E+ consultant, Board Member of International Mito Patients,
The FDA (U.S. Food and Drug Administration) has just approved Kygevvi, the first treatment for thymidine kinase 2 deficiency (TK2d),
Many voices, one mission. 53 associations united for people with rare and complex epilepsies (E+). E+ is not limited to
MARK YOUR CALENDAR: November 15, 2025 Day dedicated to the transition to adulthood for adolescents with rare diseases: TOULOUSE This
Association for Mitochondrial Diseases
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Phone: +33 6 30 84 58 27
Email: assoammi@gmail.com
A.M.Mi is a co-founder and member of:
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