{"id":2795,"date":"2021-11-29T15:47:29","date_gmt":"2021-11-29T14:47:29","guid":{"rendered":"https:\/\/association-ammi.org\/the-rare-diseases-alliance-is-launching-a-survey-in-partnership-with-the-viavoice-institute-to-gather-your-opinions-and-feedback\/"},"modified":"2021-11-29T15:47:29","modified_gmt":"2021-11-29T14:47:29","slug":"the-rare-diseases-alliance-is-launching-a-survey-in-partnership-with-the-viavoice-institute-to-gather-your-opinions-and-feedback","status":"publish","type":"post","link":"https:\/\/association-ammi.org\/en\/the-rare-diseases-alliance-is-launching-a-survey-in-partnership-with-the-viavoice-institute-to-gather-your-opinions-and-feedback\/","title":{"rendered":"The Rare Diseases Alliance is launching a survey in partnership with the Viavoice institute to gather your opinions and feedback."},"content":{"rendered":"<p>[\ud83d\udd0e Your experience matters to us]<\/p>\n<p>The next accreditation deadline for national expert centers, overseen by the Ministry of Health and Solidarity, will soon be held.<\/p>\n<p>It is within this framework that the Rare Diseases Alliance is launching a survey in partnership with the Viavoice institute to gather your opinions and feedback!<\/p>\n<p>Patients, and parents of children with rare diseases who have already received care in an expert center, share your experience!<\/p>\n<p>The objective of this survey is to better understand and improve the care of rare diseases in expert centers.<\/p>\n<p>Your feedback is valuable, which is why we invite you to answer the few questions asked. This will not take more than 15 minutes, and responses will, of course, be treated anonymously.<\/p>\n<p>\ud83d\udc49 To participate in the survey: https:\/\/logikeo.eu\/viavoice-amr<\/p>\n<p>Let&#8217;s unite for Rare Diseases \ud83e\udd1d<\/p>\n","protected":false},"excerpt":{"rendered":"<p>[\ud83d\udd0e Your experience matters to us] The next accreditation deadline for national expert centers, overseen by the Ministry of Health and Solidarity, will soon be \u2026<\/p>\n","protected":false},"author":2,"featured_media":2798,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[36,35],"tags":[],"class_list":["post-2795","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-health-support","category-news"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - 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