{"id":2782,"date":"2025-10-07T19:22:46","date_gmt":"2025-10-07T17:22:46","guid":{"rendered":"https:\/\/association-ammi.org\/the-rare-disease-meetings-2025\/"},"modified":"2025-11-19T15:19:04","modified_gmt":"2025-11-19T14:19:04","slug":"the-rare-disease-meetings-2025","status":"publish","type":"post","link":"https:\/\/association-ammi.org\/en\/the-rare-disease-meetings-2025\/","title":{"rendered":"The Rare Disease Meetings 2025"},"content":{"rendered":"\n

On October 7 & 8, our President Emma Del-Rey<\/a> proudly represents the A.M.Mi Association<\/a> at the Rare Disease Meetings 2025 at the Cit\u00e9 <\/a>Internationale Universitaire de Paris.<\/p>\n\n

Two days of reflection, exchange, and innovation around a hopeful theme:<\/p>\n\n

Screening, diagnosis, and treatments.<\/p>\n\n

The Rare Disease Meetings is a key event bringing together patients, caregivers, researchers, healthcare professionals, public decision-makers, and pharmaceutical industry stakeholders around the challenges of the 4th National Rare Disease Plan (PNMR4).<\/p>\n\n

\"👉🏻\" A.M.Mi’s presence highlights the importance of active representation for patients with mitochondrial diseases within national and European discussions on rare diseases.<\/p>\n\n

Because every advance, every discovery, every dialogue matters to offer more hope to families.<\/p>\n\n

Together, let’s advance research, diagnosis, and care.<\/p>\n\n

Day 2 Program:<\/strong><\/p>\n\n

– <\/a>From clinical research to patient access to innovations<\/p>\n\n

– Community and hospital care and follow-up<\/p>\n\n

– New tools for diagnosis and monitoring<\/p>\n\n

A great program featuring excellent speakers!!!<\/p>\n\n

Also proud to have participated from its inception to the coordination of the Rare Disease Pathways Training project with Maladies Rares Occitanie<\/a> and #DelphineDominiqueVissac<\/p>\n\n

The poster was seen by all participants and the team was able to answer questions.<\/p>\n\n

\"The<\/figure>\n","protected":false},"excerpt":{"rendered":"

On October 7 & 8, our President Emma Del-Rey proudly represents the A.M.Mi Association at the Rare Disease Meetings 2025 at the Cit\u00e9 Internationale Universitaire \u2026<\/p>\n","protected":false},"author":1,"featured_media":2783,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-2782","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-non-categorise"],"yoast_head":"\nThe Rare Disease Meetings 2025 - L'AMMi<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/association-ammi.org\/en\/the-rare-disease-meetings-2025\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The Rare Disease Meetings 2025 - 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