{"id":2843,"date":"2025-04-22T15:23:43","date_gmt":"2025-04-22T13:23:43","guid":{"rendered":"https:\/\/association-ammi.org\/news-and-events\/"},"modified":"2025-11-20T10:37:19","modified_gmt":"2025-11-20T09:37:19","slug":"news-and-events","status":"publish","type":"page","link":"https:\/\/association-ammi.org\/en\/news-and-events\/","title":{"rendered":"News and Events"},"content":{"rendered":"\t\t

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\n\t\t\t\n \n \n \n\t\t\t\t\t \n\t\t\t\t\t \n\t\n\n\n\n
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October<\/span> 2026<\/span> <\/h3> <\/td>\n\t\t\t\t\t
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Mon<\/th>\n\t\t\t\t\t\t Tue<\/th>\n\t\t\t\t\t\t Wed<\/th>\n\t\t\t\t\t\t Thu<\/th>\n\t\t\t\t\t\t Fri<\/th>\n\t\t\t\t\t\t Sat<\/th>\n\t\t\t\t\t\t Sun<\/th>\n\t\t\t\t\t\t\t <\/tr>\n <\/thead>\n\n\t\t\t\t
<\/td>\n <\/td>\n <\/td>\n \n\t
\n\t\t1<\/span>\n\t\t
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\n\t\tERDERA GT4MNGIE-CT Short proposal discussion<\/span>\n\t\t
ERDERA GT4MNGIE-CT Short proposal discussion<\/span><\/strong><\/p>\n
01\/10\/2026<\/span>  11h00<\/span> - 13h00<\/span>
\n Reuni\u00f3n de Microsoft Teams<\/span><\/p>\n
Dear all,
\nPlease find below the link for our teleconference to discuss about the ERDERA gene therapy clinical trial for MNGIE application.
\nIn the forthcoming days I will propose a draft agenda, but please suggest any subjects\/topics you think we must not forget bringing to the meeting.
\nAlso, feel free to forward to any colleagues of your teams you want to invite.
\nRamon<\/p>\n

\nReuni\u00f3n de Microsoft Teams
\nUnirse: https:\/\/teams.microsoft.com\/meet\/39382859914660?p=5MPtpzNp2PSjl6fhw8
\nId. de reuni\u00f3n: 393 828 599 146 60
\nC\u00f3digo de acceso: bf7PH9pW
\n
\n\u00bfNecesita ayuda? | Referencia del sistema
\nPara organizadores: Opciones de la reuni\u00f3n
\n[Company Logo]
\nVall d'Hebron Institut de Recerca (VHIR). En cas de problemes, podeu contactar amb informatica@vhir.org \/ En caso de problemas, pueden contactar con informatica@vhir.org \/ In case of any issues, contact at informatica@vhir.org
\nAyuda de la organizaci\u00f3n | Privacidad y seguridad
\n<\/p>\n<\/div><\/div>\n
Voir plus de d\u00e9tails<\/a><\/p><\/div>\n\t<\/li>\n<\/ul>\n\n\t\t<\/span><\/span>\n\t<\/div>\n<\/td>\n
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\n\t\t5<\/span>\n\t\t
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\n\t\tR\u00e9union sur site centres maladies rares et associations de patients - Lariboisi\u00e8re<\/span>\n\t\t
R\u00e9union sur site centres maladies rares et associations de patients - Lariboisi\u00e8re<\/span><\/strong><\/p>\n
05\/10\/2026<\/span>  12h00<\/span> - 13h30<\/span>
\n [LRB] Salle de R\u00e9union Morax 2\u00e8me AP-HP.Nord Universit\u00e9 de Paris<\/span><\/p>\n
<\/div><\/div>\n
Voir plus de d\u00e9tails<\/a><\/p><\/div>\n\t<\/li>\n<\/ul>\n\n\t\t<\/span><\/span>\n\t<\/div>\n<\/td>\n
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\n\t\tToulouse Matabiau - Montpellier Saint-Roch<\/span>\n\t\t
Toulouse Matabiau - Montpellier Saint-Roch<\/span><\/strong><\/p>\n
06\/10\/2026<\/span>  5h39<\/span> - 8h35<\/span>
\n <\/span><\/p>\n
Votre voyage
\n1 Voyageur<\/p>\n
Toulouse Matabiau -> Montpellier Saint-Roch
\n D\u00e9part le mardi 6\u00a0oct., 05:39
\n Arriv\u00e9e \u00e0 08:35
\n Dur\u00e9e\u00a0: 2h56
\n TER 876203<\/p>\n
R\u00e9f\u00e9rences\u00a0: YLWEAR - DEL REY
\nAcc\u00e9der \u00e0 mon voyage\u00a0:
\nhttps:\/\/www.sncf-connect.com\/redirect?tripId=434610ff-71d1-48fe-844e-319c9f7ed3b9&redirection_type=TRIP_IMPORT<\/p>\n<\/div><\/div>\n
Voir plus de d\u00e9tails<\/a><\/p><\/div>\n\t<\/li>\n\t
\n\t\tInauguration t\u00e9l\u00e9 expertise MRO<\/span>\n\t\t
Inauguration t\u00e9l\u00e9 expertise MRO<\/span><\/strong><\/p>\n
06\/10\/2026<\/span>  10h00<\/span> - 12h00<\/span>
\n ARS Site Apollo\n188 Rue Euclide, 34000 Montpellier, France<\/span><\/p>\n
<\/div>\n Voir plus de d\u00e9tails<\/a><\/p><\/div>\n\t<\/li>\n<\/ul>\n\n\t\t<\/span><\/span><\/span>\n\t<\/div>\n<\/td>\n
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\n\t\tR\u00e9union poster pre-diagnostic myopathies mitochondriales<\/span>\n\t\t
R\u00e9union poster pre-diagnostic myopathies mitochondriales<\/span><\/strong><\/p>\n
08\/10\/2026<\/span>  14h00<\/span> - 14h45<\/span>
\n R\u00e9union Microsoft Teams<\/span><\/p>\n

\nR\u00e9union Microsoft Teams
\nRejoindre : https:\/\/teams.microsoft.com\/meet\/31378068569107?p=ZSUDe8aXoTPxzYlc9F
\nNum\u00e9ro de r\u00e9union : 313 780 685 691 07
\nCode secret : JA9SR9PA
\n
\nBesoin d'aide ? | R\u00e9f\u00e9rence syst\u00e8me
\nInviter quelqu\u2019un \u00e0 prendre part \u00e0 une conversation sur un appareil en visioconf\u00e9rence
\nCl\u00e9 du locataire : 288417061@t.plcm.vc
\nNum\u00e9ro de vid\u00e9o : 121 028 993 2
\nPlus d\u2019informations
\nPour les organisateurs : Options de r\u00e9union
\n<\/p>\n<\/div><\/div>\n
Voir plus de d\u00e9tails<\/a><\/p><\/div>\n\t<\/li>\n\t
\n\t\tFollow up on CREA webinar & Harmony Biosciences<\/span>\n\t\t
Follow up on CREA webinar & Harmony Biosciences<\/span><\/strong><\/p>\n
08\/10\/2026<\/span>  14h30<\/span> - 15h30<\/span>
\n <\/span><\/p>\n
<\/div>\n Voir plus de d\u00e9tails<\/a><\/p><\/div>\n\t<\/li>\n\t
\n\t\tBoard Meeting - E+A Alliance<\/span>\n\t\t
Board Meeting - E+A Alliance<\/span><\/strong><\/p>\n
08\/10\/2026<\/span>  18h00<\/span> - 19h00<\/span>
\n https:\/\/us06web.zoom.us\/j\/83042223709?pwd=yWA9o0wAv5DgEoDaFOZb0pyknrmH7A.1<\/span><\/p>\n
\u2500\u2500\u2500\u2500\u2500\u2500\u2500\u2500\u2500\u2500
E+A Alliance le est\u00e1 invitando a una reuni\u00f3n de Zoom programada.<\/p>\n
\u00danase a la reuni\u00f3n de Zoom
https:\/\/us06web.zoom.us\/j\/83042223709?pwd=yWA9o0wAv5DgEoDaFOZb0pyknrmH7A.1<\/p>\n
Unirse y tomar notas
https:\/\/us06web.zoom.us\/j\/83042223709?pwd=yWA9o0wAv5DgEoDaFOZb0pyknrmH7A.1&mynotes=on<\/p>\n
Enlace al chat de la reuni\u00f3n
https:\/\/us06web.zoom.us\/launch\/jc\/83042223709<\/p>\n
Ver informaci\u00f3n sobre la reuni\u00f3n
https:\/\/us06web.zoom.us\/launch\/edl?muid=44f76528-ec59-4445-b203-d2bd1b60e406<\/p>\n
ID de reuni\u00f3n: 830 4222 3709
C\u00f3digo de acceso: 894425<\/p>\n
---<\/p>\n
M\u00f3vil con un toque
+13092053325,,83042223709#,,,,894425# Estados\u00a0Unidos
+13126266799,,83042223709#,,,,894425# Estados\u00a0Unidos (Chicago)<\/p>\n
---<\/p>\n
Unirse mediante SIP
\u2022 83042223709@zoomcrc.com<\/p>\n
Instrucciones para unirse
https:\/\/us06web.zoom.us\/meetings\/83042223709\/invitations?signature=EJP3ImnDZRTSL5zwphqtz3xuY4VuW_7MBNBL2ygfiz8<\/p>\n
\u2500\u2500\u2500\u2500\u2500\u2500\u2500\u2500\u2500\u2500<\/p>\n<\/div><\/div>\n
Voir plus de d\u00e9tails<\/a><\/p><\/div>\n\t<\/li>\n<\/ul>\n\n\t\t<\/span><\/span><\/span><\/span>\n\t<\/div>\n<\/td>\n
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\n\t\t10<\/span>\n\t\t<\/span>\n\t\t<\/span>\n\t<\/div>\n<\/td>\n
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\n\t\t13<\/span>\n\t\t
\t
\n\t\tJourn\u00e9e du rare Perpignan MDPH<\/span>\n\t\t
Journ\u00e9e du rare Perpignan MDPH<\/span><\/strong><\/p>\n
13\/10\/2026<\/span>
\n <\/span><\/p>\n
<\/div>\n
Voir plus de d\u00e9tails<\/a><\/p><\/div>\n\t<\/li>\n\t
\n\t\tERN ITHACA PAB Meeting change of date to oct 13<\/span>\n\t\t
ERN ITHACA PAB Meeting change of date to oct 13<\/span><\/strong><\/p>\n
13\/10\/2026<\/span>  15h00<\/span> - 16h00<\/span>
\n R\u00e9union Microsoft Teams<\/span><\/p>\n
Dear PAB Members
\nChange of date (conflict of Agenda)
\nWe invite you to join our next Meeting on Tuesday from 15h-16h CEST
\nKind Regards
\nAnne
\n
\nR\u00e9union Microsoft Teams
\nRejoindre : https:\/\/teams.microsoft.com\/meet\/33167938482933?p=YVBdokDVlBS6ljJbBF
\nNum\u00e9ro de r\u00e9union : 331 679 384 829 33
\nCode secret : Hy3Z8KP7
\n
\nBesoin d'aide ? | R\u00e9f\u00e9rence syst\u00e8me
\nPour les organisateurs : Options de r\u00e9union
\n<\/p>\n
Anne Hugon, Project Manager & Coordination Officer
\nEU Cheffe de Projets ERN ITHACA & CLAD IDFs
\nExpert clinical research and innovation
\nClinical Genetics Department - APHP Robert Debr\u00e9 University Hospital,75019 Paris
\n+33 (0) 6 68 96 91 07 \/ +33 1 40 03 23 39 anne.hugon@aphp.fr<\/p>\n
[cid:image001.png@01DC8AEB.086B9C50]
\nhttps:\/\/ern-ithaca.eu<\/p>\n<\/div><\/div>\n
Voir plus de d\u00e9tails<\/a><\/p><\/div>\n\t<\/li>\n<\/ul>\n\n\t\t<\/span><\/span><\/span>\n\t<\/div>\n<\/td>\n
\n\t
\n\t\t14<\/span>\n\t\t
\t
\n\t\tR\u00e9union centres experts maladies rares et leurs associations - h\u00f4pital Robert Debr\u00e9<\/span>\n\t\t
R\u00e9union centres experts maladies rares et leurs associations - h\u00f4pital Robert Debr\u00e9<\/span><\/strong><\/p>\n
14\/10\/2026<\/span>  12h30<\/span> - 14h00<\/span>
\n <\/span><\/p>\n
<\/div><\/div>\n
Voir plus de d\u00e9tails<\/a><\/p><\/div>\n\t<\/li>\n\t
\n\t\tRappel : R\u00e9union de rentr\u00e9e du groupe \u00e9thique !<\/span>\n\t\t
Rappel : R\u00e9union de rentr\u00e9e du groupe \u00e9thique !<\/span><\/strong><\/p>\n
14\/10\/2026<\/span>  17h00<\/span> - 18h00<\/span>
\n <\/span><\/p>\n
Bonjour \u00e0 toutes et tous,<\/p>\n
Nous esp\u00e9rons que vous allez bien.<\/p>\n
La prochaine r\u00e9union du groupe \u00e9thique aura lieu, mercredi 14 octobre \u00e0 17h00.<\/p>\n
Veuillez trouver ci-joint le lien zoom pour vous connecter.<\/p>\n
Sujet: R\u00e9union groupe \u00e9thique<\/p>\n
Heure: 14 oct. 2026 05:00 PM Paris<\/p>\n
Participer \u00e0 la r\u00e9union Zoom<\/p>\n
https:\/\/us06web.zoom.us\/j\/89433465918?pwd=riqxIhr3WtJRTTXHqeUrOmQFoNVtlY.1<\/p>\n
Participer et prendre des notes<\/p>\n
https:\/\/us06web.zoom.us\/j\/89433465918?pwd=riqxIhr3WtJRTTXHqeUrOmQFoNVtlY.1&mynotes=on<\/p>\n
ID de r\u00e9union: 894 3346 5918<\/p>\n
Code secret: 746498<\/p>\n
Participez \u00e0 l\u2019aide d\u2019un protocole SIP<\/p>\n
\u2022 89433465918@zoomcrc.com<\/p>\n
Instructions pour participer<\/p>\n
https:\/\/us06web.zoom.us\/meetings\/89433465918\/invitations?signature=TlBD_ufLsa6xMDvKMCV6vaT-XXSgryusXSQl7hJju_Q<\/p>\n
Bonne journ\u00e9e,<\/p>\n
Claire-Marine et C\u00e9line,<\/p>\n
<\/p>\n
De : BENSIMON Celine
\nEnvoy\u00e9 : jeudi 1 octobre 2026 12:30:11
\n\u00c0 : BERAT Claire Marine
\nCc : Paul Loup Weil-Dubuc; MALPHETTES Julia; marie-therese.abi-warde@chru-strasbourg.fr; cecile.acquaviva-bourdain@chu-lyon.fr; BRASSIER Anais; caruba.c@chu-nice.fr; david.cheillan@chu-lyon.fr; pdelonlay@gmail.com; assoammi@gmail.com; DO CAO Jeremy; HERON Benedicte; V.HESS@chru-nancy.fr; alice.kuster@chu-nantes.fr; LABRUNE Philippe; LEBRETON Louis; wmauhin@hopital-dcss.org; karine.mention@chru-lille.fr; m.tardieu@chu-tours.fr; contact@apmf-fabry.org; carole.chehowah@gmail.com
\nObjet : Rappel : R\u00e9union de rentr\u00e9e du groupe \u00e9thique !<\/p>\n
Bonjour \u00e0 toutes et tous,<\/p>\n
Merci \u00e0 celles et ceux qui ont d\u00e9j\u00e0 r\u00e9pondu.<\/p>\n
Petite rappel : ci-joint le Doodle pour organiser la prochaine r\u00e9union de notre groupe de r\u00e9flexion \u00e9thique.<\/p>\n
https:\/\/doodle.com\/sign-up-sheet\/participate\/1ab778ec-8e8f-43e0-b440-1c18e8c72074\/select<\/p>\n
Amiti\u00e9s,<\/p>\n
Claire-Marine B\u00e9rat,
\nC\u00e9line Bensimon<\/p>\n

\nDe : BENSIMON Celine
\nEnvoy\u00e9 : lundi 28 septembre 2026 19:31
\n\u00c0 : BERAT Claire Marine
\nCc : Paul Loup Weil-Dubuc; MALPHETTES Julia; marie-therese.abi-warde@chru-strasbourg.fr; cecile.acquaviva-bourdain@chu-lyon.fr; BRASSIER Anais; caruba.c@chu-nice.fr; david.cheillan@chu-lyon.fr; pdelonlay@gmail.com; assoammi@gmail.com; DO CAO Jeremy; HERON Benedicte; V.HESS@chru-nancy.fr; alice.kuster@chu-nantes.fr; LABRUNE Philippe; LEBRETON Louis; wmauhin@hopital-dcss.org; karine.mention@chru-lille.fr; m.tardieu@chu-tours.fr; contact@apmf-fabry.org; Paul Loup Weil-Dubuc; carole.chehowah@gmail.com; pdelonlay@gmail.com; OTTOLENGHI Chris; REMIL Amaria; ARNOUX Jean-Baptiste; SALENTIN Anna line; BARBIER Valerie; KHEMIRI Azza; DELAHAYE Agn\u00e8s; PION Aude
\nObjet : R\u00e9union de rentr\u00e9e du groupe \u00e9thique !<\/p>\n
Bonsoir \u00e0 toutes et tous,<\/p>\n
Nous esp\u00e9rons que vous allez bien.<\/p>\n
Veuillez trouver ci-joint un Doodle pour organiser la prochaine r\u00e9union de notre groupe de r\u00e9flexion \u00e9thique.<\/p>\n
https:\/\/doodle.com\/sign-up-sheet\/participate\/1ab778ec-8e8f-43e0-b440-1c18e8c72074\/select<\/p>\n
Pour rappel veuillez trouver ci-joint le CR de notre derni\u00e8re r\u00e9union.<\/p>\n
Bien cordialement,<\/p>\n
Claire-Marine B\u00e9rat,
\nC\u00e9line Bensimon<\/p>\n

\nDe : BENSIMON C\u00e9line
\nEnvoy\u00e9 : jeudi 16 juillet 2026 11:58
\n\u00c0 : BERAT Claire-Marine
\nCc : Paul Loup Weil-Dubuc; MALPHETTES Julia; marie-therese.abi-warde@chru-strasbourg.fr; cecile.acquaviva-bourdain@chu-lyon.fr; BRASSIER Ana\u00efs; caruba.c@chu-nice.fr; david.cheillan@chu-lyon.fr; pdelonlay@gmail.com; assoammi@gmail.com; DO CAO Jeremy; HERON Benedicte; V.HESS@chru-nancy.fr; alice.kuster@chu-nantes.fr; LABRUNE Philippe; LEBRETON Louis; wmauhin@hopital-dcss.org; karine.mention@chru-lille.fr; m.tardieu@chu-tours.fr; contact@apmf-fabry.org; Paul Loup Weil-Dubuc; carole.chehowah@gmail.com; pdelonlay@gmail.com; OTTOLENGHI Chris; REMIL Amaria; SEVIN Caroline; ARNOUX Jean-Baptiste; SALENTIN Anna line; BARBIER Valerie; KHEMIRI Azza; DELAHAYE Agn\u00e8s; PION Aude
\nObjet : RE: Prochaine r\u00e9union du groupe Ethique sur le niveau de soin dans la prise en charge palliative pour les maladies mitochondriales et lysosomales<\/p>\n
Bonjour \u00e0 toutes et tous,<\/p>\n
Veuillez trouver ci-joint le CR de la derni\u00e8re r\u00e9union de groupe de r\u00e9flexion \u00e9thique.<\/p>\n
Veuillez \u00e9galement trouver ci-joint le CR de la journ\u00e9e \u00e9thique organis\u00e9e le 27 mars r\u00e9dig\u00e9 par Paul-Loup.<\/p>\n
Merci de ne pas diffuser ce document avant qu'il ne soit publi\u00e9 de mani\u00e8re officielle !<\/p>\n
Bel \u00e9t\u00e9 \u00e0 toutes et tous,<\/p>\n
Claire-Marine
\nC\u00e9line Bensimon<\/p>\n

\nDe : BENSIMON C\u00e9line
\nEnvoy\u00e9 : vendredi 19 juin 2026 13:10
\n\u00c0 : BERAT Claire-Marine
\nCc : Paul Loup Weil-Dubuc; MALPHETTES Julia; marie-therese.abi-warde@chru-strasbourg.fr; cecile.acquaviva-bourdain@chu-lyon.fr; BRASSIER Ana\u00efs; caruba.c@chu-nice.fr; david.cheillan@chu-lyon.fr; pdelonlay@gmail.com; assoammi@gmail.com; DO CAO Jeremy; HERON Benedicte; V.HESS@chru-nancy.fr; alice.kuster@chu-nantes.fr; LABRUNE Philippe; LEBRETON Louis; wmauhin@hopital-dcss.org; karine.mention@chru-lille.fr; m.tardieu@chu-tours.fr; contact@apmf-fabry.org; Paul Loup Weil-Dubuc; carole.chehowah@gmail.com; pdelonlay@gmail.com; OTTOLENGHI Chris; REMIL Amaria; SEVIN Caroline; ARNOUX Jean-Baptiste; SALENTIN Anna line; BARBIER Valerie; KHEMIRI Azza; DELAHAYE Agn\u00e8s; PION Aude
\nObjet : RE: Prochaine r\u00e9union du groupe Ethique sur le niveau de soin dans la prise en charge palliative pour les maladies mitochondriales et lysosomales<\/p>\n
Bonjour \u00e0 toutes et tous,<\/p>\n
Nous nous r\u00e9unirons donc mercredi 24 \u00e0 17h00.<\/p>\n
Nous profiterons de cette r\u00e9union pour revenir rapidement sur la journ\u00e9e organis\u00e9e en mars, et envisager la suite des actions que nous aimerions mener notamment les r\u00e9flexions sur le niveau de soin dans la prise en charge palliative pour les maladies mitochondriales et lysosomales.<\/p>\n
C\u00e9line BENSIMON vous invite \u00e0 une r\u00e9union Zoom programm\u00e9e.<\/p>\n
Sujet: R\u00e9union groupe de travail Ethique<\/p>\n
Heure: 24 juin 2026 05:00 PM Paris<\/p>\n
Participer \u00e0 la r\u00e9union Zoom<\/p>\n
https:\/\/us06web.zoom.us\/j\/81569226484?pwd=IPKcdbtu8AQNJOv7CSdwpN9l9YyXi7.1<\/p>\n
Lien du chat de la r\u00e9union<\/p>\n
https:\/\/us06web.zoom.us\/launch\/jc\/81569226484<\/p>\n
ID de r\u00e9union: 815 6922 6484<\/p>\n
Code secret: 738433<\/p>\n
Amiti\u00e9s,<\/p>\n
Claire-Marine & C\u00e9line<\/p>\n

\nDe : BENSIMON C\u00e9line
\nEnvoy\u00e9 : lundi 15 juin 2026 08:59
\n\u00c0 : BERAT Claire-Marine
\nCc : Paul Loup Weil-Dubuc; MALPHETTES Julia; marie-therese.abi-warde@chru-strasbourg.fr; cecile.acquaviva-bourdain@chu-lyon.fr; BRASSIER Ana\u00efs; caruba.c@chu-nice.fr; david.cheillan@chu-lyon.fr; pdelonlay@gmail.com; assoammi@gmail.com; DO CAO Jeremy; HERON Benedicte; V.HESS@chru-nancy.fr; alice.kuster@chu-nantes.fr; LABRUNE Philippe; LEBRETON Louis; wmauhin@hopital-dcss.org; karine.mention@chru-lille.fr; m.tardieu@chu-tours.fr; contact@apmf-fabry.org; Paul Loup Weil-Dubuc; carole.chehowah@gmail.com; pdelonlay@gmail.com; OTTOLENGHI Chris; REMIL Amaria; SEVIN Caroline; ARNOUX Jean-Baptiste; SALENTIN Anna line; BARBIER Valerie; KHEMIRI Azza; DELAHAYE Agn\u00e8s
\nObjet : RE: Prochaine r\u00e9union du groupe Ethique sur le niveau de soin dans la prise en charge palliative pour les maladies mitochondriales et lysosomales<\/p>\n
Bonjour \u00e0 toutes et tous,<\/p>\n
Nous esp\u00e9rons que vous allez bien.<\/p>\n
A l'approche de l'\u00e9t\u00e9, dans le but de faire (enfin) un retour sur notre journ\u00e9e du 27 mars et de pr\u00e9parer la rentr\u00e9e nous aimerions, r\u00e9unir le groupe avant la SFEIM.<\/p>\n
Merci de renseigner le Doodle ci-joint.<\/p>\n
https:\/\/doodle.com\/sign-up-sheet\/participate\/b4bab051-13a5-4cb4-b404-95cd02ba4679\/select<\/p>\n
Bien cordialement,<\/p>\n
Claire-Marine & C\u00e9line<\/p>\n
C\u00e9line Bensimon
\nPsychologue Clinicienne
\nDoctorante Universit\u00e9 de Paris, ED 450, laboratoire CRPMS
\nFili\u00e8re de sant\u00e9 Maladies Rares G2M,
\nH\u00f4pital Necker - Enfants malades
\n149, rue de S\u00e8vres
\nB\u00e2timent Kirmisson
\n75015 Paris
\nceline.bensimon@aphp.fr
\nNB: Pour le service des maladies m\u00e9taboliques, vous pouvez me joindre au 01 71 76 08 56, les mardis de 14h \u00e0 18h et vendredis de 9h30 \u00e0 13h30.<\/p>\n<\/div><\/div>\n
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\n\t\tAccueil \u00bb Inscription journ\u00e9e annuelle de la plateforme \u2013 Vendredi 16 octobre 2026 Inscription journ\u00e9e annuelle de la plateforme \u2013<\/span>\n\t\t
Accueil \u00bb Inscription journ\u00e9e annuelle de la plateforme \u2013 Vendredi 16 octobre 2026 Inscription journ\u00e9e annuelle de la plateforme \u2013<\/span><\/strong><\/p>\n
16\/10\/2026<\/span>
\n <\/span><\/p>\n
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Voir plus de d\u00e9tails<\/a><\/p><\/div>\n\t<\/li>\n\t
\n\t\tArt Show Concept Review - Final monthly meeting<\/span>\n\t\t
Art Show Concept Review - Final monthly meeting<\/span><\/strong><\/p>\n
16\/10\/2026<\/span>  14h30<\/span> - 15h15<\/span>
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\nR\u00e9union Microsoft Teams
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\nNum\u00e9ro de r\u00e9union : 389 949 943 003 741
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\n\t\tReview of EU TK2d and Kygevvi data slides with EU advocates<\/span>\n\t\t
Review of EU TK2d and Kygevvi data slides with EU advocates<\/span><\/strong><\/p>\n
20\/10\/2026<\/span>  15h30<\/span> - 16h30<\/span>
\n Microsoft Teams Meeting<\/span><\/p>\n
This time worked for the majority so I wanted to please go ahead and hold the spot.
\nMariella and Emma, will this hopefully work for you?
\nThank you! We will send the slides to review in advance so you have time to prepare comments.<\/p>\n

\nMicrosoft Teams meeting
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\n\t
\n\t\t21<\/span>\n\t\t
\t
\n\t\tR\u00e9union poster pre-diagnostic myopathies mitochondriales<\/span>\n\t\t
R\u00e9union poster pre-diagnostic myopathies mitochondriales<\/span><\/strong><\/p>\n
21\/10\/2026<\/span>  17h15<\/span> - 18h00<\/span>
\n R\u00e9union Microsoft Teams<\/span><\/p>\n

\nR\u00e9union Microsoft Teams
\nRejoindre : https:\/\/teams.microsoft.com\/meet\/3425356274903181?p=HBDMa6RxXGegyxOXRq
\nNum\u00e9ro de r\u00e9union : 342 535 627 490 318 1
\nCode secret : Wr2eM6e7
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\nInviter quelqu\u2019un \u00e0 prendre part \u00e0 une conversation sur un appareil en visioconf\u00e9rence
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\nNum\u00e9ro de vid\u00e9o : 127 827 183 4
\nPlus d\u2019informations
\nPour les organisateurs : Options de r\u00e9union
\n________________________________<\/p>\n<\/div><\/div>\n
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\n\t\t22<\/span>\n\t\t
\t
\n\t\tBoard Meeting - E+A Alliance<\/span>\n\t\t
Board Meeting - E+A Alliance<\/span><\/strong><\/p>\n
22\/10\/2026<\/span>  18h00<\/span> - 19h00<\/span>
\n https:\/\/us06web.zoom.us\/j\/83042223709?pwd=yWA9o0wAv5DgEoDaFOZb0pyknrmH7A.1<\/span><\/p>\n
\u2500\u2500\u2500\u2500\u2500\u2500\u2500\u2500\u2500\u2500
E+A Alliance le est\u00e1 invitando a una reuni\u00f3n de Zoom programada.<\/p>\n
\u00danase a la reuni\u00f3n de Zoom
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\n\t\tArt Show concept review - Final meeting<\/span>\n\t\t
Art Show concept review - Final meeting<\/span><\/strong><\/p>\n
26\/10\/2026<\/span>  17h15<\/span> - 18h00<\/span>
\n <\/span><\/p>\n
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\n\t\tArt Show concept review - Final meeting<\/span>\n\t\t
Art Show concept review - Final meeting<\/span><\/strong><\/p>\n
26\/10\/2026<\/span>  17h15<\/span> - 18h00<\/span>
\n <\/span><\/p>\n
Join Zoom Meeting
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\n\t\tMeeting Servier & E+ Alliance<\/span>\n\t\t
Meeting Servier & E+ Alliance<\/span><\/strong><\/p>\n
29\/10\/2026<\/span>  10h45<\/span> - 11h15<\/span>
\n https:\/\/us06web.zoom.us\/j\/83809010078?pwd=b6U6aa62LdXYN3bsQVsY3K6koqPaN8.1<\/span><\/p>\n
\u2500\u2500\u2500\u2500\u2500\u2500\u2500\u2500\u2500\u2500
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